Son de Florida y descubrieron que su hija tiene una rara enfermedad mortal gracias a TikTok: “Alzheimer infantil”

En el corazón de Florida, una familia oriunda del condado de Flager enfrenta un difícil reto frente a una enfermedad poco común y que amenaza la vida de su hija Veda, quien tiene cuatro años de edad. La niña fue diagnosticada con el Síndrome de Sanfilippo, una afección neurodegenerativa terminal que les quita a los niños la capacidad de hablar, provoca convulsiones y trastornos del movimiento, incluida la habilidad de comer. Conocido como “Alzheimer infantil”, este síndrome suele terminar en la muerte durante la adolescencia.

Los padres de la menor, Christin y Jericho Ulrich, comenzaron su búsqueda de respuestas hace poco más de dos años, cuando Veda empezó a mostrar una serie de síntomas, como el declive en su habla y problemas recurrentes de salud. Fue a través de TikTok que encontraron una imprevista conexión que finalmente condujo al diagnóstico correcto.

Sumado a sus problemas físicos, Veda también comenzó a mostrar un comportamiento agresivo e hiperactivo que, en apariencia, indicaba un posible diagnóstico de autismo. Además, empezó a tener recurrentes tropiezos, hasta el punto de que ya no podía subir las escaleras del patio del recreo que antes ascendía con facilidad. “Los médicos no podían decirnos qué le estaba pasando”, explicó Christin, madre de la niña, a CBS News, Trooper no solo logró sobrevivir al temporal, sino que enfrentó secuelas físicas severas: debió someterse a una cirugía por cáncer y a otra intervención para extraerle más de 100 fragmentos de basura del estómago.","type":"text"},{"content":"El caso fue tomado por el gobernador Ron DeSantis como ejemplo de crueldad animal extrema. Desde sus redes sociales, aseguró: “Dejar a un perro sufrir solo en una tormenta es inhumano, y ahora tendrá consecuencias penales severas”.","type":"text"},{"content":"Qué establece la Ley Trooper en Florida","type":"header"},{"content":"La “Ley Trooper”, identificada como Florida Senate Bill 150, establece penas más severas para casos de crueldad animal en contextos de emergencia. ","type":"text"},{"type":"list"},{"type":"image"},{"content":"La ley entrará en vigor el 1° de octubre de 2025, según señaló Associated Press, y apunta a evitar casos como el de Trooper, cuyo dueño, Giovanny Aldama García, enfrenta cargos por crueldad animal agravada. La fiscal estatal Suzy López confirmó que el juicio se realizará este año.","type":"text"},{"content":"La Ley Dexter: penas más duras por crueldad animal en Florida","type":"header"},{"content":"En paralelo, DeSantis firmó la “Ley Dexter”, inspirada en otro caso que conmocionó a Florida y captó atención nacional. Dexter era un perro que, pocos días después de ser adoptado en San Petersburgo, fue hallado decapitado en un parque público.","type":"text"},{"type":"image"},{"content":"El crimen provocó protestas, vigilias y una intensa campaña de organizaciones de protección animal. Entre ellas, In Defense of Animals celebró la condena máxima impuesta a Domingo Rodríguez, acusado de matar y decapitar a Dexter, que había adoptado ese mismo día o el anterior. ","type":"text"},{"content":"El 21 de febrero de 2025, un jurado declaró culpable a Rodríguez, quien fue sentenciado a un año de cárcel —menos un día ya cumplido—, más 60 días adicionales por arrojar el cuerpo de Dexter en un parque público. Además, se le ordenó pagar 6395 dólares en costas judiciales y una multa.","type":"text"},{"content":"La ley Dexter establece condenas más altas que la Trooper:","type":"text"},{"type":"list"},{"content":"","type":"text"}],"display_date":"2025-05-30T19:28:29.96Z","headlines":{"basic":"Las leyes firmadas por DeSantis que se inspiraron en dos perritos de Florida","mobile":"Las leyes firmadas por DeSantis inspiradas en perros: endurecen las penas por crueldad animal"},"label":{"recomendar":{"text":"Si"},"volanta":{"display":true,"text":"Dos 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